Today Jojo had his checkup with Dr. Belknap his GI doc. He said he has come such a long way from when they first met over 2 1/2 years ago! He wants him to continue on the Prevacid every other day. That is a big change from the twice daily he used to be on. He wants to continue to monitor him but only about 2 times a year instead of 4 times a year. This sure helps Mom out with all his therapy and appointments he goes to!!! He still sees the neurologist every 3-4 months and the ENT every 4-6 months. He actually has an ENT appt next Monday! Dr. also suggested the possiblity of him seeing an allergist. He has had a chronic runny nose/constant colds. He has missed countless days of school because of his faucet nose. Never a fever, no other symptoms and the rest of us aren't getting sick......so we are thinking he has some sort of terrible allergies. He asked if allergies run in the family.......I laughed and said "oh yeah!" Dominic sees the allergist quite frequently for bad allergies, asthma and eczema! I hope Jojo isn't headed down the road of daily breathing treatments, allery meds, eye drops, and skin creams........
He is still struggling with weight gain but as the Dr. pointed out he is probably just a lean kid! He is only between 5-10th percentile at 29 lbs. He is getting taller though. He is 39 inches up and inch or two from last time. He is just my little peanut! He is still in a size 2T for pants and some 2T and some 3T for shirts.
We had conferences a couple of weeks ago with Jojo's teacher. She said that she is amazed at his progress and already had to revise his goals on his IEP. She shared with us some testing they do on the kids and he scored Advanced and Very Advanced for every section in the receptive skills. She said he is a really really smart kid and that is both good and bad for his speech issues. She said even without knowing him back then she could tell how severely impaired he once was in communication. The good thing is that he is very smart and always knew he had a problem but the bad part is he is now hesitant to speak spontaneously (with the exception of close family and friends) for fear of not being understood.......even though he speaks well enough to be understood. She said the challenge is getting him out of that thought process/mindset but that is hard because he was so challenged for so long. She needs him to understand that yes, people will know what you are saying instead of just playing it safe.
He is still getting speech therapy twice a week during school as well as OT and PT. He also still goes twice a week to the Kaufman Center in West Bloomfield. He still has articulation issues and some word retrieval issues but continues to make GREAT progress!
The kids saw Santa yesterday and Jojo LOVED him. He started frantically waving to him when he saw him and then happily sat on his lap. When we got home he said "Mom I saw the REAL Santa Claus!" They are sooooo excited for Christmas.
He is still struggling with weight gain but as the Dr. pointed out he is probably just a lean kid! He is only between 5-10th percentile at 29 lbs. He is getting taller though. He is 39 inches up and inch or two from last time. He is just my little peanut! He is still in a size 2T for pants and some 2T and some 3T for shirts.
We had conferences a couple of weeks ago with Jojo's teacher. She said that she is amazed at his progress and already had to revise his goals on his IEP. She shared with us some testing they do on the kids and he scored Advanced and Very Advanced for every section in the receptive skills. She said he is a really really smart kid and that is both good and bad for his speech issues. She said even without knowing him back then she could tell how severely impaired he once was in communication. The good thing is that he is very smart and always knew he had a problem but the bad part is he is now hesitant to speak spontaneously (with the exception of close family and friends) for fear of not being understood.......even though he speaks well enough to be understood. She said the challenge is getting him out of that thought process/mindset but that is hard because he was so challenged for so long. She needs him to understand that yes, people will know what you are saying instead of just playing it safe.
He is still getting speech therapy twice a week during school as well as OT and PT. He also still goes twice a week to the Kaufman Center in West Bloomfield. He still has articulation issues and some word retrieval issues but continues to make GREAT progress!
The kids saw Santa yesterday and Jojo LOVED him. He started frantically waving to him when he saw him and then happily sat on his lap. When we got home he said "Mom I saw the REAL Santa Claus!" They are sooooo excited for Christmas.
1 comment:
I just sat here and got caught up on the Jojo and the rest of your family. I was way behind. As you said it is easy to get behind in the summer. Jojo sounds like he is doing so much better. You are doing a great job.Thamks for sharing. The boys are so handsome and growing so fast.
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